I'm just halfway my radiotherapy and the exhaustion has kicked in. I wish I could have delayed it a bit more by being active, and go out and do stuff, but it's not working. I'm supposed to rest more according to my new 2 meter tall doctor (forgot his name). It's gonna be tough. Yesterday I didn't do ANYTHING but watch southpark episodes on southparkstudios. No need to say I felt deeply depressed afterwards. I laughed a bit too. But what Im' trying to say is: how can I "rest" if it makes me even more depressed and tired?
The little girl with Epidermolytic Hyperkeratosis (another name for Bullous Congenital Ichthyosiform Erythroderma) is doing fine at the moment. Her name is Sarah. Parents are very positive but I really feel for them. Can't be easy...
I feel a bit empty these days...
Saliwali,
RépondreSupprimerGeef me een belleke als ge uw dagen wat voller wilt maken he. De winter maakt het er ook niet makkelijker op waarschijnlijk. Altijd een gaatje voor u. Zal proberen een zonneke mee te brengen. Dikke kus en veel veel moed.
Tot gauw,
Barbara
Empty or not, thank for blogging. I don't comment much but I read everything you write and I can't wait for you to come to work!
RépondreSupprimerGen
My daughter also has EHK. please direct Sarah's parents to my blog, http://fromthehouseonthehill.blogspot.com
RépondreSupprimeralso there are a lot of people willing to help at the www.ichthyosis.com forums.
It is surely natural to feel a bit 'empty' now... Look after yourself, and do the things that make you happy. xxxL
RépondreSupprimer