It's a difficult name for a difficult disease... My best friend's sister gave birth on the 31st of December to a beautiful little girl with this illness. As soon as I have more info about it, I'll write something. I'm in shock. It's a terrible disease...
As for me, it's same old same old. I'm getting pretty tired these days, and problems with late payments had me frustrated and annoyed. Such a bureaucratic state! Anyway... more soon.
Oh, what a disease. I just read up an article about it on wikipedia and it seems horrible to be afflicted by it from birth. The poor little baby girl. I read that they're working on geneatic treatment for such skin diseases, but are still in the process of testing. I hope they soon find a solution that will help the girl in long term, not only soothing the skin for a short period. Just thinking that you can hurt your little baby by simply touching it is just so horrible. I wish the little baby and her parents all the best.
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